Our Little Lymphedema Warriors

These children are the inspiration for Brylan's Feat Foundation 

 
 

CORA

Cora is 2 years old and suffers from primary lymphedema in both arms, hands, and her entire lower body. Her parents have tried everything to manage Cora's painful swelling. Unfortunately, non-invasive treatment has not worked for Cora and she is in need of life changing treatment and surgery.

Treatment provided by BFF: Financial assistance for surgery.

 

Tristan

Tristan suffers from primary lymphedema that affects his left hand, left arm, left leg, and right foot. He has already had two previous lymph node transfer surgeries that dramatically helped the pain and swelling. He is now in need of a third surgery. Brylan's Feat Foundation is honored to be able to help Tristan continue his journey of surgical lymphedema treatment by providing financial assistance. 

 
 

Ritej

Ritej has been diagnosed with lymphedema in both of her legs and feet. She lives in Tunisia and as far as her parents and doctor know, she is the only case in the country. Because of this, there are virtually no resources for her to receive treatment. Ritej is in need of continual compression therapy to manage her swelling.

Treatment provided by BFF: Sets of compression bandages and wrapping materials.

Dreshawn

Dreshawn is almost 3 years old and has been diagnosed with primary lymphedema in his hand. He is one of six children in his family and is the only one suffering from lymphedema. It is amazing that he has learned to smile through the pain that his swelling causes him on a daily basis.

Treatment provided by BFF: Sets of compression bandages and wrapping materials.

 

Isla, grace, and hope

Isla, Grace, and Hope are sisters from Arizona who all suffer from primary lymphedema in each of their feet and legs. They do not have any family history of the disease or a rare disease associated with lymphedema. Their cases of lymphedema are mild, but still need daily treatment to avoid any major complications of the disease.

Treatment provided by BFF: Sets of compression bandages and wrapping materials.

 

Camila

Camila is 2 years old and lives in Peru. She was diagnosed with lymphedema in her left arm at 8 months old. Unfortunately, there are no knowledgeable lymphedema doctors where she lives. Due to a lack of a treatment plan, Camila’s swelling has continued to get worse.

Treatment provided by BFF: Sets of compression bandages and wrapping materials.

 

hannah

Hannah is 4 years old and was diagnosed with Tuner Syndrome at 13 weeks gestation. Her lymphedema is a symptom of TS and was present at birth in both her legs and feet. As she grew, Hannah began to have swelling in her hands as well.

Treatment provided by BFF: Custom compression garments.

 

tanner

Tanner is 18 months old and was diagnosed with lymphedema when he was 9 months. His swelling was noticed in one hand at 6 months and then by 12 months it showed in both. Tanner has tried lymphatic massage and wrapping, but his skin became irritated and began to blister. He was then prescribed customized compression garments for his arms and hands, but his insurance would not cover them.

Treatment provided by BFF: Custom compression garments.

 

Leilla

Leilla is an 11 year old girl who was diagnosed with Turner Syndrome when she was 4 years old. She has had many medical complications from TS which has caused her to have several hospitalizations and even a feeding tube at one point. One of the symptoms from TS is lymphedema in her hands and feet which has continued to worsen as she has gotten older.

Treatment provided by BFF: Custom compression garments.

 

Emma

Emma is 15 years old and was diagnosed with Klippel-Trenaunay Weber Syndrome at birth and then with CLOVES syndrome in 2015. She has had many complications from both syndromes including swelling of her face, torso, groin, and right leg. She was diagnosed with lymphedema a little over 3 years ago.

Treatment provided by BFF: Custom compression garments and off the shelf garments.